How to find a genetic counselor on Facebook

As social media continue to flourish, all types of people and businesses are recognizing ways in which social media can help them better connect with others and reach their goals. Traditionally, I am not the biggest fan of social media, as it is extremely time-consuming and fills my brain with mostly useless information. I recently had a social media experience, however, in which I realized that it can be used as an effective tool to help me do my job.

As a genetic counselor, I am a member of many Facebook (FB) groups related to genetic diseases. About two weeks ago, I was FB emailed from a member of a genetic eye disease FB group asking me if I was affected with said disease, as her child was recently diagnosed. I replied that I wasn’t but am a genetic counselor, and I asked if she needed any help getting the resources she needs for her child and her family. She replied, “What is a genetic counselor?”

As one of the couple thousand genetic counselors in the United States, I often hear this question. Yet, I was still surprised when a parent of a child with a genetic disorder, someone who could benefit from seeing a genetic professional, hadn’t even heard of genetic counselors. So, what is a genetic counselor?

Genetic counselors are health professionals trained in both human genetics and counseling. Genetic counselors are trained in:

  • Assessing risk for inherited conditions
  • Offering appropriate genetic testing options (when available)
  • Explaining the benefits and limitations of genetic testing
  • Answering questions regarding genetic testing or inherited risk
  • Educating about disease characteristics, management, prevention and follow-up
  • Providing emotional support
  • Referring to specialists or outside recourses (when needed)

Although there are many different reasons to see a genetic counselor, it is sometimes difficult to find local services. The National Society of Genetic Counselors has a directory that can be a good place to start. AccessDNA has also created a directory to help people access local genetic counseling services.

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About AccessDNA
AccessDNA is the leading online consumer resource for genetics. The company combines high-quality content about genetics with access to, and evaluation of, relevant testing, counseling and support services.

By providing insight into the genetics of disease, AccessDNA helps people better understand their treatment, management and prevention options.
About Jordanna Joaquina

Jordanna Joaquina, MS, CGC is Director of Genetics and a Co-Founder of AccessDNA. She has a clinical background in multiple disciplines of genetics, including prenatal, adult onset and pediatric.

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