> Cohen Syndrome

PINELLAS PARK — In 2006, Mikayla DeMarco had one wish — a red tricycle like the one she rode in class. That wish was granted by the Kids Wish Network, a national nonprofit that grants wishes to children with life-threatening illnesses. Beth DeMarco, however, just wanted to know what afflicted her daughter. After nearly 14 years, with the help of a doctor at All Children's Hospital, she learned that her daughter has a rare disease — so uncommon that only about 1,000 people in the world have been diagnosed with it.